Outcomes in Child Health (OUTCH): What matters to you and your family?
This is a guest post written by Dr. Michele Dyson, an Assistant Professor at the Alberta Research Centre for Health Evidence, Department of Paediatrics at the University of Alberta.
Selecting the most appropriate outcomes to measure in research is important so we can make sure that healthcare providers have the knowledge they need to make informed treatment decisions with their patients. To select the most appropriate research outcomes, emphasis needs to be placed on understanding which outcomes matter most to patients so that research results will be relevant to them in their treatment and care.
We are using Facebook to facilitate discussions with parents of children between the ages of 0-18 who have had an acute respiratory infection, so we can better understand their priorities for outcomes. Parents are the experts when it comes to their children, and we have so much to learn from their experiences!
The chilly winter weather brings lots of coughs and colds, so we are hoping that those of you with children will participate in the discussion on Facebook, and those of you who don’t, will share our Facebook page to help us connect with families.
On our Facebook page, we are sharing reliable, parent-friendly information on acute respiratory infections. We are also hosting a number of different discussion topics on our timeline where parents can chat with us, as well as each other, about what is important to them when their child has a respiratory infection. Discussion topics have included:
1. Getting medical help
2. Medical tests
3. Medical treatment
4. Course of illness
In the coming weeks, we will be discussing the financial burden some families may experience when their child has an acute respiratory infection, the impact acute respiratory infections can have on family daily activities and routines, and finally, illness complications.
We have had some great discussion so far, and we hope to get more parents involved so they can share their experiences and have the opportunity to have their voice be heard in research.
Help us make a difference. Check out our Facebook page and join in the discussion! Tell us what matters.